INKLUDE
International NetworK for interstitial LUng DiseasE
Supported by UKRI Global Challenges Research Fund
ABOUT INKLUDE
Addressing the global health challenges of interstitial lung disease
and its burdens on developing nations
Health and wellbeing
Education and awareness
Economy and workers
COMING SOON... COVID-19 initiatives in development
RECENT EVENTS
3rd March 2020
NETWORK MEETING
Symposium and workshop to network and co-develop pilot initiatives.
Sao Paulo, Brazil
OBJECTIVES
Tackling interstitial lung disease in Brazil 2020 and beyond
IMPROVE CARE
Support doctors in recognising signs
INCREASE AWARENESS
Support public education and access
KEEP WORKERS SAFE
Support and protect livelihoods
KEY FACTS
Interstitial Lung Disease
An international group of researchers, doctors, entrepreneurs and organisations will convene in Sao Paulo 2020 to co-develop strategies to improve awareness, clinical support and care management of interstitial lung diseases in developing nations.
The challenges presented in Brazil reflect those seen globally.
HEALTH CHALLENGE
Lung destuction
This group of diseases show gradual worsening of lung health following lung injury and scarring, rather than recovery. Symptoms can be slow to present and are often mistaken for more common respiratory problems. However, individuals can suddenly progress rapidly and lose the ability to breathe.
EDUCATION CHALLENGE
Public Awareness
These diseases are classed as rare and are relatively unknown, yet collectively they are becoming an increasing public health concern. There are estimated to be over 1,000 new cases of idiopathic pulmonary fibrosis each year in Brazil, an example of a severe ILD which drastically reduces life expectancy. At risk groups and populations must be engaged with and supported to access early care.
ECONOMIC CHALLENGE
Work and trade
Often the diseases can develop following exposure to conditions faced by manual labourers working with lung damaging dusts and chemicals in industries that are pivotal to developing nations. This prevents working age adults support their families and impacts on sustainability.
Robust real-world clinical data is crucial to hold the rise of Healthcare costs, including the rising costs of lung disease diagnosis. However, until today, this data is not available on a large scale. Innovative approaches regarding realistic medical protocols and software are urgent to keep Healthcare from financial collapse.
TECHNOLOGICAL CHALLENGE
PROJECT LEADS
Project Lead
Based in UK at the University of Nottingham and within NIHR Biomedical Research Centre.
Expertise in big data analytics and medical statistics of clinical studies.
Iain Stewart
Clinical Lead
Based at Research Institute of Hospital do Coracao and Universidade de Sao Paulo, in Brazil.
Expertise in interstitial lung disease management and clinical trial design.
Letícia Kawano-Dourado
Digital Lead
CEO of Mindify, a digital health start-up that supports diagnosis of rare disease, based in Brazil.
Expertise in artificial intelligence and innovation with impact.
André Ramos
FUNDERS AND PARTNER ORGANIZATIONS
