INKLUDE

International NetworK for interstitial LUng DiseasE

Supported by UKRI Global Challenges Research Fund

 

ABOUT INKLUDE

Addressing the global health challenges of interstitial lung disease
and its burdens on developing nations

  • Health and wellbeing

  • Education and awareness

  • Economy and workers

COMING SOON... COVID-19 initiatives in development

 

RECENT EVENTS

3rd March 2020

NETWORK MEETING

Symposium and workshop to network and co-develop pilot initiatives.

Sao Paulo, Brazil

 
 

OBJECTIVES

Tackling interstitial lung disease in Brazil 2020 and beyond

IMPROVE CARE

Support doctors in recognising signs

INCREASE AWARENESS

Support public education and access

KEEP WORKERS SAFE

Support and protect livelihoods

KEY FACTS

Interstitial Lung Disease

An international group of researchers, doctors, entrepreneurs and organisations will convene in Sao Paulo 2020 to co-develop strategies to improve awareness, clinical support and care management of interstitial lung diseases in developing nations.
The challenges presented in Brazil reflect those seen globally.

HEALTH CHALLENGE

Lung destuction

This group of diseases show gradual worsening of lung health following lung injury and scarring, rather than recovery. Symptoms can be slow to present and are often mistaken for more common respiratory problems. However, individuals can suddenly progress rapidly and lose the ability to breathe.

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Image by Roman Kraft

EDUCATION CHALLENGE

Public Awareness

These diseases are classed as rare and are relatively unknown, yet collectively they are becoming an increasing public health concern. There are estimated to be over 1,000 new cases of idiopathic pulmonary fibrosis each year in Brazil, an example of a severe ILD which drastically reduces life expectancy. At risk groups and populations must be engaged with and supported to access early care.

ECONOMIC CHALLENGE

Work and trade

Often the diseases can develop following exposure to conditions faced by manual labourers working with lung damaging dusts and chemicals in industries that are pivotal to developing nations. This prevents working age adults support their families and impacts on sustainability.

Image by Patrick Hendry
 

Robust real-world clinical data is crucial to hold the rise of Healthcare costs, including the rising costs of lung disease diagnosis. However, until today, this data is not available on a large scale. Innovative approaches regarding realistic medical protocols and software are urgent to keep Healthcare from financial collapse.

 

TECHNOLOGICAL CHALLENGE

PROJECT LEADS

Project Lead

Based in UK at the University of Nottingham and within NIHR Biomedical Research Centre.

Expertise in big data analytics and medical statistics of clinical studies.

Iain Stewart

Clinical Lead

Based at Research Institute of Hospital do Coracao and Universidade de Sao Paulo, in Brazil.

Expertise in interstitial lung disease management and clinical trial design.

Letícia Kawano-Dourado

Digital Lead

CEO of Mindify, a digital health start-up that supports diagnosis of rare disease, based in Brazil.

Expertise in artificial intelligence and innovation with impact.

André Ramos

 

FUNDERS AND PARTNER ORGANIZATIONS

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©2019 by GCRF INKLUDE.