INKLUDE

International NetworK for interstitial LUng DiseasE

Supported by UKRI Global Challenges Research Fund

 

ABOUT INKLUDE

Addressing the global health challenges of interstitial lung disease
and its burdens on developing nations

  • Health and wellbeing

  • Education and awareness

  • Economy and workers

NEW!

INKLUDE tackles fair access to COVID-19 care

 

RECENT EVENTS

3rd March 2020

NETWORK MEETING

Symposium and workshop to network and co-develop pilot initiatives.

Sao Paulo, Brazil

 
 

OBJECTIVES

Tackling interstitial lung disease in Brazil 2020 and beyond

IMPROVE CARE

Support doctors in recognising signs

INCREASE AWARENESS

Support public education and access

KEEP WORKERS SAFE

Support and protect livelihoods

KEY FACTS

Interstitial Lung Disease

An international group of researchers, doctors, entrepreneurs and organisations are co-developing strategies to improve awareness, clinical support and care management of interstitial lung diseases in developing nations.
The challenges presented in Brazil reflect those seen globally.

HEALTH CHALLENGE

Lung destuction

This group of diseases show gradual worsening of lung health following lung injury and scarring, rather than recovery. Symptoms can be slow to present and are often mistaken for more common respiratory problems. However, individuals can suddenly progress rapidly and lose the ability to breathe.

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Image by Roman Kraft

EDUCATION CHALLENGE

Public Awareness

These diseases are classed as rare and are relatively unknown, yet collectively they are becoming an increasing public health concern. There are estimated to be over 1,000 new cases of idiopathic pulmonary fibrosis each year in Brazil, an example of a severe ILD which drastically reduces life expectancy. At risk groups and populations must be engaged with and supported to access early care.

ECONOMIC CHALLENGE

Work and trade

Often the diseases can develop following exposure to conditions faced by manual labourers working with lung damaging dusts and chemicals in industries that are pivotal to developing nations. This prevents working age adults support their families and impacts on sustainability.

Image by Patrick Hendry
 

The technological revolution in innovative smart products and artificial intelligence offers promising applications to support disease management in diverse and disadvantaged communities, however there are a number of hurdles regarding the community's readiness for digital health, creation and storage of robust large-scale clinical data, and real-world implementation of technological innovations.

The INKLUDE interdisciplinary network aims to address these challenges.

 

TECHNOLOGICAL CHALLENGE

PROJECT LEADS

Iain Stewart

Project Lead

Based at the University of Nottingham and within NIHR Biomedical Research Centre.

Expertise in big data analytics and medical statistics of clinical studies.

Letícia Kawano-Dourado

Clinical Lead

Based at Research Institute of Hospital do Coracao and Universidade de Sao Paulo, in Brazil.

Expertise in interstitial lung disease management and clinical trial design.

André Ramos

Digital Lead

CEO of Mindify, a digital health start-up that supports diagnosis of rare disease, based in Brazil.

Expertise in artificial intelligence and innovation with impact.

Jade Kettlewell

Implementation Lead

Based at the University of Nottingham within the Business School and School of Medicine.

Expertise in health service innovation and implementation.

 

FUNDERS AND PARTNER ORGANIZATIONS

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©2020 by INKLUDE.