INKLUDE
International NetworK for interstitial LUng DiseasE
Supported by UKRI Global Challenges Research Fund
RECENT EVENTS
3rd March 2020
NETWORK MEETING
Symposium and workshop to network and co-develop pilot initiatives.
Sao Paulo, Brazil
OBJECTIVES
Tackling interstitial lung disease in Brazil 2020 and beyond
IMPROVE CARE
Support doctors in recognising signs
INCREASE AWARENESS
Support public education and access
KEEP WORKERS SAFE
Support and protect livelihoods
KEY FACTS
Interstitial Lung Disease
An international group of researchers, doctors, entrepreneurs and organisations are co-developing strategies to improve awareness, clinical support and care management of interstitial lung diseases in developing nations.
The challenges presented in Brazil reflect those seen globally.
HEALTH CHALLENGE
Lung destuction
This group of diseases show gradual worsening of lung health following lung injury and scarring, rather than recovery. Symptoms can be slow to present and are often mistaken for more common respiratory problems. However, individuals can suddenly progress rapidly and lose the ability to breathe.
EDUCATION CHALLENGE
Public Awareness
These diseases are classed as rare and are relatively unknown, yet collectively they are becoming an increasing public health concern. There are estimated to be over 1,000 new cases of idiopathic pulmonary fibrosis each year in Brazil, an example of a severe ILD which drastically reduces life expectancy. At risk groups and populations must be engaged with and supported to access early care.
ECONOMIC CHALLENGE
Work and trade
Often the diseases can develop following exposure to conditions faced by manual labourers working with lung damaging dusts and chemicals in industries that are pivotal to developing nations. This prevents working age adults support their families and impacts on sustainability.
The technological revolution in innovative smart products and artificial intelligence offers promising applications to support disease management in diverse and disadvantaged communities, however there are a number of hurdles regarding the community's readiness for digital health, creation and storage of robust large-scale clinical data, and real-world implementation of technological innovations.
The INKLUDE interdisciplinary network aims to address these challenges.
TECHNOLOGICAL CHALLENGE
PROJECT LEADS
Iain Stewart
Project Lead
Based at the University of Nottingham and within NIHR Biomedical Research Centre.
Expertise in big data analytics and medical statistics of clinical studies.
Letícia Kawano-Dourado
Clinical Lead
Based at Research Institute of Hospital do Coracao and Universidade de Sao Paulo, in Brazil.
Expertise in interstitial lung disease management and clinical trial design.
André Ramos
Digital Lead
CEO of Mindify, a digital health start-up that supports diagnosis of rare disease, based in Brazil.
Expertise in artificial intelligence and innovation with impact.
Jade Kettlewell
Implementation Lead
Based at the University of Nottingham within the Business School and School of Medicine.
Expertise in health service innovation and implementation.
FUNDERS AND PARTNER ORGANIZATIONS
